My ADHD diagnosis at 53: the relief, the grief and rebuilding

I was diagnosed with ADHD at 53. At first, I thought the diagnosis would bring relief, which it did. But what I didn't expect was the grief.
Debbie stood behind a gate - familiar feelings of a barrier.

I was diagnosed with ADHD at 53. 

At first, I thought the diagnosis would simply bring relief. I imagined it would explain why I had always felt so exhausted, anxious and low at times, why my brain never seemed to switch off, and why some parts of everyday life felt so much harder for me than they appeared to be for other people.

And it did bring relief. It gave me a new language for my life. It helped me understand patterns I had never been able to make sense of before, the:

That feeling that I was either doing everything or completely depleted finally began to make more sense.

But what I did not expect was the grief. Diagnosis did not just explain my present. It made me look back across 53 years and gently, painfully, re-examine everything I thought I knew about myself. It also brought up the painful “what ifs” – what if I had known sooner, and what might have been different if I had understood myself earlier?

I did not think I was different

Unlike some late-diagnosed people, I did not grow up thinking I was different. I was just me. I bounded through life. I did not have a clear plan. I fell into things, stayed if I enjoyed them, and moved on when I became bored. I was passionate, spontaneous and deeply caring. I threw myself into the things and people that mattered to me.

Looking back, I can now see things differently. I hated conflict and would do almost anything to avoid it. It could make me feel physically ill. I worried about what people thought of me and would replay conversations in my head after a night out, wondering if I had said the wrong thing, been too loud, taken up too much space or simply been too much. It was exhausting, but at the time I did not recognise it as something I could step back from. It was simply how I existed.

I also struggled with ordinary life admin. Organising time, shopping, cooking, getting places on time and keeping everything together often felt harder than I thought it should.

My moods could move quickly. I could feel OK in the morning, but by the afternoon my mood could crash if something happened that I reacted strongly to. I was sensitive to changes in other people’s moods and could go from happy to sad within the same day.

At the time, I did not see these things as ADHD. I saw them as personal failings. I thought I was anxious, disorganised, over-sensitive, chaotic, lazy or not trying hard enough. I now know that was never the full story.

Motherhood, work and constantly pushing through

When I became a mum, I took a break from my role as a social worker to focus my energy on my family. I did not really stop to think about the years of training, work and effort that had gone into building that career. I made the decision quickly and moved on, because that was often how I lived: feeling my way forward rather than following a careful plan. At the time, it felt spontaneous. Looking back, I can see how often big decisions happened quickly, without much space to pause and reflect.

After my second child, I experienced postnatal depression. Managing a toddler and a screaming baby was incredibly hard. On the outside, I put on a brave face and ploughed on. Inside, I was drowning. I did not ask for help. I just kept spinning, always late, always a bit chaotic, always trying to keep going.

Later, I returned to work and enjoyed being a social worker again, but boredom has been a pattern in my life. I would become excited by a new challenge, throw myself into it completely, and then feel restless again. I moved into project work, adult social care and eventually senior leadership in the NHS. I cared deeply about my work and gave it everything. But often, there was very little left of me at the end of the day.

When ADHD was first suggested to me, I did not believe it.

When my son started to struggle

When my son moved to secondary school, he began to struggle and became a non-attender. My happy-go-lucky son seemed to disappear before my eyes as anxiety and low mood took over. We were suddenly thrown into a world of school meetings, assessments, uncertainty and trying to understand the SEND system.

Eventually, with hindsight, we recognised that my son might be autistic. He was diagnosed, and I threw all my energy into fighting for the support he needed: to be well, to access education and to have the right specialist provision.

Understanding my son’s autism diagnosis opened the door to learning much more about neurodiversity. Around the same time, my daughter was having therapy, and it was suggested to her that she might have ADHD. She was later diagnosed too, and in one of those strange full-circle moments, we were both prescribed Concerta on the same day. Looking back, all of this has been a revelation. Through my son, my daughter and my own diagnosis, I have learned so much about autism, ADHD and the many ways neurodivergence can show up in a family.

At that point, I was juggling a full-time NHS senior role, the desire to perform well and please people, and the emotional and practical load of being a parent carer. The cracks were beginning to show, but I still did not stop. I kept going because keeping going was what I knew.

The diagnosis and the crash afterwards

When ADHD was first suggested to me, I did not believe it. I had an outdated picture in my head of what ADHD looked like, and it did not include women like me. But then I started reading about ADHD in women, ADHD and hormones, and late diagnosis. I remember reading a case study and feeling as if I was reading about myself. It was a profound moment of recognition.

I paid privately for an assessment because I could not wait. I was diagnosed with combined ADHD: both hyperactive and inattentive. I thought I would feel only relief. But after the diagnosis, I crashed.

My whole identity shifted. Everything I had believed about myself suddenly needed to be looked at again. I grieved for what could have been different. I thought about having babies and young children without understanding my brain. I thought about the years of anxiety, depression, burnout and negative self-talk. I thought about all the times I had told myself I was lazy, too much, not good enough or somehow failing, when in reality I had been trying so hard for so long.

Rebuilding with more compassion

I decided to try medication because I wanted to feel better. It brought some calm, but medication was only one part of the picture. I also needed time, therapy, coaching and space to process what it meant to re-examine 53 years of my life through a new lens.

Working with a neurodiverse specialist helped me feel seen, heard and understood. I began to slow down and learn about my ADHD brain. I started to understand what had worked for me, what had stopped working, and what I needed to change. Slowly, I made small, sustainable changes to bring more balance into my life. Exercise, breathwork and meditation also became part of that rebuilding.

One of the biggest shifts through coaching was beginning to notice my people-pleasing and lack of boundaries. I had spent years saying yes, pushing through and trying not to let people down. I do not think I had really understood that I was allowed to pause, to ask what I needed, or to say no. Coaching helped me realise that looking after myself was not selfish. It was necessary.

Later, discovering that I was hypermobile also helped explain the boom-and-bust pattern that had shaped so much of my life. ADHD and hypermobility together made sense of things I had judged myself for. I was not lazy. I was not stupid. I was not broken. I was beginning to understand myself properly for the first time.

My diagnosis at 53 was not the end of my story. It was the beginning of rebuilding with more honesty, more self-compassion and more understanding. If you have been diagnosed later in life and feel relief one day and grief the next, please know that you are not alone. Both can be true. A diagnosis can be painful and freeing. It can ask you to look back, but it can also help you move forward with a kinder understanding of who you have always been – and who you are still becoming.

More blogs

An expression of frustration
For much of my life, I coped by pushing through. From the outside, I could look capable and high functioning. Inside, I was often running on adrenaline, anxiety and sheer determination.

Interested in exploring adult ADHD coaching?

I’d love to talk. Book a free call and we can talk through what help you might need.

Debbie walking with a client during an adult ADHD coaching session